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13th August, 2018
Although August 13th isn't a significant date in my health matters, it is the date that I wrote this rather lengthy blog post, back in 2012.
It's now become a bit of a tradition for me to post an annual update on this date.
Other Jiggity Posts
The posts are given the title "Jiggity", because my original post was titled "Home Again, Home Again, Jiggity Jig"!
It's a handy keyword when searching for these health posts.
A tumour/cyst/blob was wedged in my head, somewhere between the Spinal Cord and Cerebellum, near the Fourth Ventricle.
Thankfully the tumour turned out to be none-cancerous, but once they removed it, the balance issues kicked in, and I ended up stuck in the hospital, on various drips and oodles of medicines, vomiting daily, for literally months.
It wasn't a pleasant time.
21st May, 2018
A lovely salad for dinner, but a single slice of cheese was enough to kick off a killer migraine!
6th March, 2018
Six years to the day that they found the great big tumour in my head.
In the time since, I've created over 130 games, built 3 different Frameworks including the recent C++ one, and drawn a heck of a lot of daily Pixelart doodles, tons of ALChoons, completely rewritten two fairly large websites, and a whole load more.
None of this would've been possible without the great Neurosurgery team up at Salford Royal, (specifically, Dr Leggate's team) and the wonders that are the British NHS.
Thanks to all who contributed to the removal of the thing which brought great pain over many years.
.. All except my local GP who consistently told me, FOR YEARS, that I just had a cramp in my neck from "Bad Posture", sitting at the computer all day.
26th December, 2017
A standard Xmas in the house of Jay.
The morning was spent unwrapping the insane amount of sweets that I'd been gifted.
Since folk know not to buy me Chocolate (since it gives me migraines) and they're desperately trying not to resort to buying Xmas Socks, they all seem to end up buying me a curious variety of sweets.
Each one trying desperately to find the most unique sweet they can, in a bid to outdo each other.
I unwrapped an alarming number of Jelly Beans, yesterday!
13th August, 2016
Four years ago, I made this post, all about my hospital and brain tumour gubbins. It's been a long time since then, so I guess it's time for an update...
In general, my health is about the same. Over the past few years, I've learned the sort of things that can cause me to get queasy, and am attempting to avoid such things. I've learned that over-exerting myself can cause a lot of unexpected sickness, and that if I want a somewhat pleasant day without feeling bad, I generally just need to sit in one place and not move.
It's certainly not the greatest lifestyle in the world, but at least I can get my coding done.
13th August, 2015
Three years ago, I posted this post, all about my time in and out of hospital having a rather large splodge of evil-stuff removed from the middle of my head.. It's become something of an annual ritual to post a similar blog each year.
Most of my current health problems stem from a lack of balance.
The head is a fluid-filled place, and it all tends to slosh about in there, but it's all closed off so the sloshing of the fluid doesn't usually cause an issue.
When they removed the large tumour/cyst/whatever from my head, it left a bit of a hole, where all this fluid is sloshing about, and causing some pretty severe balance issues.
Essentially, if I move my head slowly about the place, the sloshing isn't too bad, and I can cope well. But if I move around too quickly, or tilt in "just" the wrong way, my head starts to spin, and I become completely off-balance.
Being in the house, this isn't too much of an issue, but when I go outside, I instinctively tend to look around. Watching for oncoming pedestrians, and trying to cross the road, requires a large amount of head tilting and spinning. As such, it's incredibly difficult for me to be outside. There's too many variables, and things aren't good for me.
Similarly, lying down can be difficult! If I move from a seated position to a flat-on-my-back one, the fluid rush causes a HUGE issue in my head, leading to my eyes rolling around, and me being unable to move for a short time due to the insane dizziness. Really not a good situation, and it means I have to gently lie down on my side, and maybe roll around to get comfortable.
Another complication is when there are people talking around me. Listening to a conversation between two people, shifting my view between them, and again sloshing that goop about inside my head. It's not very nice, and is hard to cope with.
6th March, 2015
March 6th 2012 : Taken into hospital with High Blood Pressure and Vomiting
March 8th 2012 : Brain Surgery for Tumour removal.
Previous Health Updates
Aug 2012, Feb 2014, Aug 2014
2012 wasn't a very fun year for me.
I spent the better part of 5 months stuck in a hospital ward, and most of that time I was throwing up every single day.
A myriad of pills, patches and injections were used to desperately try to stop the vomiting, but eventually they gave up trying, and sent me home.
Luckily the daily vomiting's died down.
Three years on, and I'm somewhat settled into my new life. I can't really do anything too physical. My balance is messed up, and too much movement tends to bring back the sickness. (Putting up the Xmas Tree is a particularly queaziness-inducing event.) But for the most part, I've learned that staying sat on the couch all day, is a fairly decent way of ensuring I'm not in constant need of my sick-bowl.
I currently spend most of the day sat on the couch, coding games, drawing silly Platdude pictures, and all those other things that fill up my Twitter/Facebook feed.
I don't get out much, but am seemingly capable of getting into the village and back without being too sick, as long as I only attempt it on a "good" day. "Bad" days tend to leave me much queazier, and if I dare attempt a trip outside.. .. Hopefully the sickbowl isn't too far away!
I'm thankful that I'm still here, that the surgeon's were fantastic at what they did, and that my Blood Pressure was so remarkably high that they needed to perform a CT scan to figure out why!! (.. Because just a couple of weeks earlier, my GP had sent me for an xray, and told me there was nothing wrong..)
Three years on.. I'm not perfectly fit and healthy, but I know it could've been much worse, and that I've been extremely lucky.
God Bless the NHS!
22nd August, 2014
12th February, 2014
Not normally the type of thing I post, here. I tend to leave AGameAWeek to the gamey stuff, but folk keep inquiring, so I guess it's something that some people seem to love to know about!
30th November, 2013
Last March I was taken into hospital with a brain tumor. There's a lengthy blog about that, here.
Since then, although I'm "mentally" fine, I'm all sorts of physically screwed up!
I can barely stand in one spot without wobbling about, and trying to have a short stroll outside is somewhat chaotic.
In general I tend to stumble around, and can barely look around me, so have to always have someone with me incase I randomly wander into the path of oncoming traffic!.. Which I can't look out for, because I'm unable to glance around!!
It's a dangerous world out there, and I'm not fit enough to cope with it!!
As the year has gone on, I've been tackling walks.
Some days I'm able to get as far as the local village center. Other days, I can barely walks around to the corner of the street before I'm struggling. .. And it's not a very big street, either!
I've taken to counting steps using my 3DS. Each day me and Mum brave the outdoors, and we see how far I start to stumble too much and need to turn back.
On good days, I can manage a decent distance. On others, nothing much at all.
Realtime stats are provided via Twitter : @Jayenkai : Watch out for "Today's Stroll" tweets!
For those interested in stats, a collection of Step-Stats since Mid-June are available in This Google Doc's Spreadsheet, and will be updated for as long as I can remember to do that!!
19th December, 2012
Over the course of my illness, and recovery, there's been a fair number of forum topics, over at Socoder.
If you're interested, and/or bored, why not have a nosey!
You can also read the great big epic story of my hospital visit, here
The Lump Linkage
1.5 litres Linkage
Bloody Nurses Linkage
16th December, 2012
I suppose I should explain things. Right now I'm still learning to cope with my health! It's not easy, and it's taken me a heck of a long time. I'm still not up to 100%, but I'm definitely getting close to it.
I'm quite glad that my mind is intact, given what I've been through, but at the minute my mind seems to be quite happy to sit about and be lazy. Although I've managed to create a couple of little playthings, I'm not yet ready to go the whole hog, and whittle out a new game every week. I've started to refer to myself as Lazy Jay, since I can't seem to do anything other than mess about on Twitter and Facebook all day! This is a bad habit, and I really need to kick myself back into action.
In a vague attempt to help Kickstart myself, I've recentl made two important purchases.
First, I bought a laptop, so I can continue to be Lazy Jay, sitting on the couch, but also bother to get some coding done. Has it helped? ... Maybe a little. .. But not a lot, yet!
Secondly, I finally bought Monkey, the newest language from Blitz Research, which should hopefully allow me to write single-source games for Win, Mac, iOS and maybe even Android! I just have to build a whole entire new framework from scratch. .. *sigh*
I'm hoping that, with a little luck, I'll be ready to kick things off in the new year. It might take a few weeks to get the framework running, but I'll try as best as I can.
AGameAWeek is coming back. It's just taking a bit more time than I expected it to!
23rd September, 2012
Nice to see that you're feeling better and back to normal!
Cheers indeed. Although, I wouldn't quite count me as back to normal, just yet.
9th September, 2012
A month later and the situation is generally about the same.
You'd think that, a month later, the sickness might've worn off, but it hasn't.
Each and every morning I'm waking up and being sick.
Well, I say each and every morning, but I've actually managed to have three good days over the past couple of weeks, where I've not been sick at all.
This is a good sign.
It's a sign that, somewhere, things are going in the right direction.
Still, I'm not back on my feet just yet.
Along with the sickness is a general lethargic feeling.
Perhaps it's the fact that I've been doing sod all for the past seven months, but to be honest I'm typically sat in a chair, coding, all day anyway.
Surely sitting reading crap on my phone all day should be around about the same amount of laziness, right?
Maybe not, as I'm struggling to get the energy to do practically anything, lately.
As a rough example of my current state of laziness, I've yet to actually properly use my PC since I got back home.
I turned it on the other day, hoping to sit and code for a little while, but instead found myself having to install a stupidly large number of updates, ranging from a crapload of Windows updates, through to AVG and my graphics card, and then theres always an Adobe Flash update to do.
After an hour of that shit, I gave up and turned the PC off again.
Instead, I've been sitting on the couch each day with my newly acquired iPad.
Being a struggling indie developer, I had to get the iPad on credit.
I "bought" it from Very.co.uk, who will continue to take payments from me for the next year or so, whilst increasing the cost by constantly adding interest to the account.
Such is the way of the penniless.
But I definitely needed to get an iPad, so I'm happy that Very finally bothered to add them to their catalogue.
So here I am with my iPad, visiting Facebook, Twitter and Socoder in an insanely frequent schedule, and playing Pinball Dreams whenever I get too bored.
Which is currently fairly often.
I'm nearly at a position to get back to coding.
If I can sit down at the PC without it nagging at me, then I might yet give it a go.
First up will be a couple of browser based games at PlayMyCode.com, because they save me having to piss about with uploads and things.
AGameAWeek will return soon enough.
Hopefully it won't be another whole month!!
13th August, 2012
If you've been following AGameAWeek for the past few years, you'll have noticed the occasional blip, where I've mentioned having a repeating neck cramp, with accompanying migraines. These have gotten steadily worse, up until early March 2012, when I was curled over the toilet bowl, throwing up a worryingly black goo of sorts.
Enough was enough!
An ambulance was called, and after my blood pressure failed to register (too high!?) I was whizzed off to Bolton general where they continued to test my blood pressure, over and over again. Luckily they also decided to do a CT scan, because that's where they finally found the tumour, nestled in between my brain and my spine.
11th April, 2012
I finally got home on Thursday night, and BOY what a relief that was!
Home, My own bed, Relaxed, Relieved!
Except when I sat at my PC, at which point, my difference in eyesight became a bit of a nightmare, as I realised I could no longer see my computer screen!
A few days later, a feint, a trip to a docs, and MORE pills being dished out, I'm now oddly able to use the downstairs PC to a certain degree of visibility. It's still a bit blurry, and I really do need to focus. I might even cheat, and reduce the resolution a wee bit
But it's readable, and that means I can type stuff in, which hopefully means a game in the not too distant future.
2nd April, 2012
I'm still stuck here.
But with any luck, the next few days should be my last in here.
There's an odd bubble forming at the back of my neck, which appears to be getting larger each day.? Hopefully this is meant to dissipate, and leave me feeling all healthy again.? Currently its doing the exact opposite.
And so I continue to sit here, half asleep knocked out from the Codine, just kinda doing naff all.
I've definitely added a bunch of game ideas to my AGameAWeek todo list, though!
The games are coming..? ? I just need to get out, first
20th March, 2012
The basic result is in.
I have a cist, (of what particular sort I've yet to be told / can remember) somewhere between my brain and my spine, which has been causing "pressure".
Apparently the drain that I had last week is enough to have curbed any possible damage, and frequent scans/drains oughta keep it under control.
They're apparently quite happy to leave the thing in there, since its no longer a threat.? I hope they're right!
...? still not certain about yesterday, though.? ? That whole "oozing neck" thing wasn't too nice.
18th March, 2012
Another Sunday in hospital.
Since I posted last Tuesdays game, I've been cooped up in an NHS bed, waiting..
A "something" was found in a CT scan, an ambulance called, something drained, and now its a case of waiting around to see exactly what that something turns out to be.
It's annoying to think that, nearly two whole weeks later, I'm still sat here. I still have a headache, and I still have a sore neck.
And I wonder/worry what the results may bring?
Operation two is not out of the question..
5th July, 2011
I've suffered with migraines my whole life, so whenever one attacks, I can usually get rid of it by about mid-afternoon.
The basic motions are as follows.
Step 1. Paracetamol.
Nothing stronger, since I've taught my body to control the migraines so well.
Plus, if I DO take anything stronger, bad head waveyness occurs!!
Step 2. Dark Room.
A general tip from anyone. Lights out. Curtains shut. Close out the world.
Step 3. Comedy.
This one's a little unorthodox, I'll give you that, but I've always found that rewatching a classic comedy is good for keeping your spirits up.
Red Dwarf, Corner Gas, Friends, Frasier..
The good re-watchables.
They tend to help.
Step 4. Bed.
Rest, Sleep, Relax, Migraine Be Gone.. hurray!