Jiggity – Four Years On…

Four years ago, I made this post, all about my hospital and brain tumour gubbins. It’s been a long time since then, so I guess it’s time for an update…

In general, my health is about the same. Over the past few years, I’ve learned the sort of things that can cause me to get queasy, and am attempting to avoid such things. I’ve learned that over-exerting myself can cause a lot of unexpected sickness, and that if I want a somewhat pleasant day without feeling bad, I generally just need to sit in one place and not move.
It’s certainly not the greatest lifestyle in the world, but at least I can get my coding done.
.. :/

Read More

“Jiggity” – Three Years On

Three years ago, I posted this post, all about my time in and out of hospital having a rather large splodge of evil-stuff removed from the middle of my head.. It’s become something of an annual ritual to post a similar blog each year.

Balance

Most of my current health problems stem from a lack of balance.
The head is a fluid-filled place, and it all tends to slosh about in there, but it’s all closed off so the sloshing of the fluid doesn’t usually cause an issue.
When they removed the large tumour/cyst/whatever from my head, it left a bit of a hole, where all this fluid is sloshing about, and causing some pretty severe balance issues.
Essentially, if I move my head slowly about the place, the sloshing isn’t too bad, and I can cope well. But if I move around too quickly, or tilt in “just” the wrong way, my head starts to spin, and I become completely off-balance.

Being in the house, this isn’t too much of an issue, but when I go outside, I instinctively tend to look around. Watching for oncoming pedestrians, and trying to cross the road, requires a large amount of head tilting and spinning. As such, it’s incredibly difficult for me to be outside. There’s too many variables, and things aren’t good for me.

Similarly, lying down can be difficult! If I move from a seated position to a flat-on-my-back one, the fluid rush causes a HUGE issue in my head, leading to my eyes rolling around, and me being unable to move for a short time due to the insane dizziness. Really not a good situation, and it means I have to gently lie down on my side, and maybe roll around to get comfortable.

Another complication is when there are people talking around me. Listening to a conversation between two people, shifting my view between them, and again sloshing that goop about inside my head. It’s not very nice, and is hard to cope with.

Read More

Three Years Later..

March 6th 2012 : Taken into hospital with High Blood Pressure and Vomiting
March 8th 2012 : Brain Surgery for Tumour removal.

Previous Health Updates
Aug 2012, Feb 2014, Aug 2014

2012 wasn’t a very fun year for me.
I spent the better part of 5 months stuck in a hospital ward, and most of that time I was throwing up every single day.
A myriad of pills, patches and injections were used to desperately try to stop the vomiting, but eventually they gave up trying, and sent me home.
Luckily the daily vomiting’s died down.

Three years on, and I’m somewhat settled into my new life. I can’t really do anything too physical. My balance is messed up, and too much movement tends to bring back the sickness. (Putting up the Xmas Tree is a particularly queaziness-inducing event.) But for the most part, I’ve learned that staying sat on the couch all day, is a fairly decent way of ensuring I’m not in constant need of my sick-bowl.

I currently spend most of the day sat on the couch, coding games, drawing silly Platdude pictures, and all those other things that fill up my Twitter/Facebook feed.

I don’t get out much, but am seemingly capable of getting into the village and back without being too sick, as long as I only attempt it on a “good” day. “Bad” days tend to leave me much queazier, and if I dare attempt a trip outside.. .. Hopefully the sickbowl isn’t too far away!

I’m thankful that I’m still here, that the surgeon’s were fantastic at what they did, and that my Blood Pressure was so remarkably high that they needed to perform a CT scan to figure out why!! (.. Because just a couple of weeks earlier, my GP had sent me for an xray, and told me there was nothing wrong..)

*phew*

Three years on.. I’m not perfectly fit and healthy, but I know it could’ve been much worse, and that I’ve been extremely lucky.

God Bless the NHS!

Counting Steps

Last March I was taken into hospital with a brain tumor. There’s a lengthy blog about that, here.

Since then, although I’m “mentally” fine, I’m all sorts of physically screwed up!

I can barely stand in one spot without wobbling about, and trying to have a short stroll outside is somewhat chaotic.
In general I tend to stumble around, and can barely look around me, so have to always have someone with me incase I randomly wander into the path of oncoming traffic!.. Which I can’t look out for, because I’m unable to glance around!!

It’s a dangerous world out there, and I’m not fit enough to cope with it!!

As the year has gone on, I’ve been tackling walks.
Some days I’m able to get as far as the local village center. Other days, I can barely walks around to the corner of the street before I’m struggling. .. And it’s not a very big street, either!

I’ve taken to counting steps using my 3DS. Each day me and Mum brave the outdoors, and we see how far I start to stumble too much and need to turn back.
On good days, I can manage a decent distance. On others, nothing much at all.

Realtime stats are provided via Twitter : @Jayenkai : Watch out for “Today’s Stroll” tweets!

For those interested in stats, a collection of Step-Stats since Mid-June are available in This Google Doc’s Spreadsheet, and will be updated for as long as I can remember to do that!!

bit.ly/JaysSteps

Read More

Home Again, Home Again, Jiggity Jig

If you’ve been following AGameAWeek for the past few years, you’ll have noticed the occasional blip, where I’ve mentioned having a repeating neck cramp, with accompanying migraines. ┬áThese have gotten steadily worse, up until early March 2012, when I was curled over the toilet bowl, throwing up a worryingly black goo of sorts.
Enough was enough!

An ambulance was called, and after my blood pressure failed to register (too high!?) I was whizzed off to Bolton general where they continued to test my blood pressure, over and over again. ┬áLuckily they also decided to do a CT scan, because that’s where they finally found the tumour, nestled in between my brain and my spine.
eek!

Read More